It’s Chandra’s Birthday!!!
I was diagnosed to be suffering from MOTOR NEURON DISEASE (MND) in June 2006 by Neurologists in University of Hong Kong and later confirmed by the Motor Neuron Research Centre in Kings College, London, UK. I was told that I would die within THREE years. They also told me that if I do not develop any complications that I may live up to a maximum of FIVE years. It is ELEVEN years since I was diagnosed to be suffering from MND. I had a Respiratory Arrest in February 2011. Since then I am permanently connected to a Ventilator I.e. for SIX years and FOUR months. In Sri Lanka, probably I am the longest surviving patient permanently connected to a ventilator. Now I am unable to move both arms and legs. I am typing this letter with the help of an attendant telling him what key to press. Now I am unable to pass stools as I do not have the strength to push the stools through the anal sphincter. An attendant manually removes the stools periodically.